Submitted by Ismar Costa e Silba, Rafaella's Father, 1st September 2014
This story was submitted to us in Portugese, and has used Google Translate to translate to english. For this reason, there may be some very basic details (ie him/her/it) lost in translation. Leia esta história em português
Rafaella was 13 years old when she had her one and only Gardasil vaccination. This is her story:
Rafaella Barbosa de Oliveira lives in Resende, RJ, Brazil. She was thirteen years old when she got her first Gardasil shot – the recombinant quadrivalent vaccine against Human Papilloma Virus (type 184.108.40.206), batch J011180, validity 12-11-2015, on March 21, 2014, administered at her school. She was in the 9th class.
Our daughter, Rafaella, had always been a healthy girl. She loved to skate, swim, play ball, and dance. She was learning to play guitar when her Gardasil nightmare began.
Two hours after the injection, she began to feel sharp pains in her right arm, the same arm in which she got the shot. She was taken home and her mother was contacted at work. Rafaella took a painkiller, but the pain did not diminish. During the evening and throughout the night, Rafaella still had a lot of pain.
Rafaella searched for help at the emergency facilities of a local hospital, where she was treated for tendinitis and taken back home. The pains were still stronger and her hand and arm were more swollen. The pain started radiating to her shoulder. Rafaella was taken to a specialist at an orthopedic clinic, where they suspected reflex sympathetic dystrophy, or Pain Syndrome.
The right arm and right hand were still very swollen, so we sought consultation with several doctors outside the city. Since some doctors do not recognize the problem, they didn’t have enough experience to treat it.
Time passed, and while Rafaella was searching for treatment in Sao Paulo, it was noticed that she had visual difficulties in addition to severe headaches and tingling in the feet. We took her for consultation with an ophthalmologist who noted papilledema, after an examination of fundus of eye. The next step was an urgent nuclear magnetic resonance (MRI).
Rafaella was hospitalized from June 27 to July 4. Her examination included a cerebrospinal fluid puncture and spinal column pressure measurements. She also had an MRI, a venography of the skull and an angiography. She was diagnosed with high intracranial pressure and a pseudo brain tumor.
She was diagnosed with at least 18 obstructed veins in the brain, spine, and between the lung and the heart and neck. The conclusion was a deficit in intracranial venous drainage, cervical and thoracic area.
An endovascular neurosurgeon out of our state did an emergency surgical procedure to remove the obstructions from her veins and arteries. Four days after this procedure, Rafaella was already walking normally again and had regained her sight/vision. The complex regional pain syndrome that was on her arm was also cured with this procedure.
28 days after she underwent this procedure my daughter was almost normal. She was walking and talking perfectly, and seeing normally. She was without any symptoms or pain, except for the dystrophy in the right arm still there. She still has a bit of tachycardia, but we hope that is going to normalize soon.
Another thing, after she took the HPV vaccine Rafaella had stopped menstruating. Recently she was also graced with the return of her period. All this improvement was made by the endovascular neurosurgeon.
Rafaella did a treatment; today she no longer needs a wheelchair for mobility. She no longer feels dizzy. She sleeps well now. Rafaella is far better today, but still needs to stay home because she developed chronic fatigue syndrome and will require another procedure and constant monitoring for some time.
Rafaella before Gardasil